I stopped all medications as requested by my Doctor, only to find that it was not changing the rising Creatinine levels. then I attended a Blue Jays Game on the Hottest recorded day in Toronto, I sat in the stands enjoying my 4 hour game - upon leaving and heading for a drink and food afterwards I developed a pounding headache, the headache caused me to head home and sleep on an ice pillow, over the next few days the headaches returned with a burning head sensation, I used ice and still took no medications but by the Sunday I could not speak in any sensible language !
I was in and out of consciousness over the next 4 weeks as they tried to determine what I had and, why my body was fevering every few hours to 96.4C. My fevers were so bad that, needles would not stay in my arms.
I kept sweating and soaking my clothes and bedding, the sweating caused the lines that were inserted to pop right out of my arms - finding a working vein was becoming increasingly more challenging for all of the nurses! When they did finally find a vein, it was too close to a nerve ending - everyone heard that yell !!
All the while, I was not eating Hospital food (it was truly awful, so, I opted for family to look after getting me food) I ate Pizza, Burgers, Salads, Indian, Mexican, Sweets, and whatever I craved my family looked after.
I still was 36 lbs off my weight from when I came in and I was determined to try and get myself over the 125 lb mark..
I was to be released after the 5th week, but was too weak and unable to walk due to muscle atrophy,.
By now they had a full diagnosis and now could treat my condition with the correct drugs and targeting the issue(s)...Viral Meningitis, it had developed and expanded as a result of the Kidney Stone blockage, then I exacerbated the issue by my 4 hour play in the sun for the Blue Jays Game, the heat from the sun caused the infection to plume and enter my bloodstream then my brain !
Week 6 saw me gain back some ability to walk with the assistance of a walker and in-house physio, but, there was trouble with my recent blood results, they showed I had picked up the MRSI virus in the hospital and now, I would need treatment for that for a week before I could be released !
I finally got released on week 7, 36 LBS lighter, no clothes to wear that fit, I had to pick up some clothes before I got home.
I had about 5 weeks to get well enough to return to work on Nov 1,
I ended up back in hospital for almost a week as a result of the infection returning (no antibiotics meant the organisms had free reign).!
This time the hospital staff doctor inserted a PICC line so I could have IV Meds to be delivered as required without running the risk of not finding a vein that would work. So, for 4 weeks I was on ceftazadime, then they stopped the antibiotic against my protestations and no doctor would carry the prescription forward without a bunch of new tests that wouldn't be done before the surgery was to happen.
I, was now booked for surgery Dec 2, and of course over that 2.5 week wait the infection returned sending me back to hospital for a short 4 day stay. This time the Hospital did 2 surgical procedures, 1 was for a new Nephrostomy line, and the 2nd was to move the PICC line to the opposite arm, both done this time with local freezing and me wide awake...not a fun procedure and not recommended by me! both the old PICC Line and the Nephrostomy line were sent to test if they harboured the organisms that caused the infection.
I am now on Ceftazedime until January 29th - with a surgical procedure scheduled for January 24th 2017 so after 9 months there is light at the end of the tunnel, hope does spring eternal and 2017 is going to be an awesome year...at least on this side of the border. !
I am determined to keep up this Blog, even after a long stretch of ignoring it, it was a gift and I need to make it be what it was intended to be - a view into the great city and all it has to offer. !
Cheers,
Philip
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